World Hemophilia Day is a global healthcare event celebrated on the 17th of April every year with the intention to raise awareness and understanding of hemophilia and other bleeding disorders.
A rare severe, inherited hemorrhagic disorder, hemophilia is caused by malfunction of factor VIII and factor IX protein (factors required for blood clotting/coagulation), leading to an abnormality in blood coagulation. Although people of all races and ethnicities can be diagnosed with hemophilia, men are more likely to be affected because the ailment is connected to the X chromosome.
World Hemophilia Day aims to:
Promote the importance of taking coordinated and concerted actions to achieve treatment for all
Draw attention to the key issues and put hemophilia and bleeding disorders in the spotlight
The theme of the event this year is “Access for All: Prevention of bleeds as the global standard of care”. The call to action for the community in 2023 is to come together and advocate with local policy makers and governments for improved access to treatment and care with an emphasis on better control and prevention of bleeds for all people with bleeding disorders. This means the implementation of home-based treatment as well as prophylactic treatment to help those individuals have a better quality of life.
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